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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 22 2:38pm | Replies (736)
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@susanml

Good day all. I’m waiting to start Camzyos after being diagnosed HCM 6 months ago. I’ve gone down hill quickly and other drugs have not helped. I’m anxiously waiting to get my life back. All the best Susan in Canada.

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Replies to "Good day all. I’m waiting to start Camzyos after being diagnosed HCM 6 months ago. I’ve..."
boatsforlife | @boatsforlife | Nov 8, 2023

Welcome @susanml . The folks here are very supportive and it's a good place to see what others have been experiencing with HOCM with or without Camzyos. You won't get medical advise here of course. I hope you have results as good as mine have been so far!

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Debra, Volunteer Mentor | @karukgirl | Nov 9, 2023

Hello @susanml, and Welcome to Mayo Connect! Like @boatsforlife mentioned, this is a very supportive support group. The Camzyos people are super helpers. They share with each other the things they have learned about this new drug protocol and are happy to reach out to help you too. There are many in the Camzyos group from Canada, so you are in good company.
I am so sorry to hear you have gone down hill so quickly. That must be frightening and very concerning. And just finding out six months ago too! When do you begin Camzyos?

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