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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Good day all. I’m waiting to start Camzyos after being diagnosed HCM 6 months ago. I’ve gone down hill quickly and other drugs have not helped. I’m anxiously waiting to get my life back. All the best Susan in Canada.
Replies to "Good day all. I’m waiting to start Camzyos after being diagnosed HCM 6 months ago. I’ve..."
Hello @susanml, and Welcome to Mayo Connect! Like @boatsforlife mentioned, this is a very supportive support group. The Camzyos people are super helpers. They share with each other the things they have learned about this new drug protocol and are happy to reach out to help you too. There are many in the Camzyos group from Canada, so you are in good company.
I am so sorry to hear you have gone down hill so quickly. That must be frightening and very concerning. And just finding out six months ago too! When do you begin Camzyos?
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Welcome @susanml . The folks here are very supportive and it's a good place to see what others have been experiencing with HOCM with or without Camzyos. You won't get medical advise here of course. I hope you have results as good as mine have been so far!