Brenda, I am also under the "Active surveiilance and wait" regimen. Will not take (or enven able to take) the stem cell transpalnt route due to age (soon 77). Due to low WBC, I avoid all large indoor gatherings as well as wear a mask when shoppoing etc. Due to low RBC, I am anemic, but still excercise and keep quite metally active, But mostly, working at enjoying life. I am fortuante to not have any headcahes or pain... Maybe you need to find out why you are getting headaches?
jean-pierre