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@monkeytime777 i have this but was diagnosed with hereditary spastic paraplegia complex type. it was found by a mitochondrial genetic test. potassium and calcium ion channelopathy can also give these symptoms it's more noticeable at bedtime because your muscles are not receiving the instructions to stop so you get that sensation. there's a lot of thing it could be besides ALS. I know its scary especially with this kind of thing. Best of luck to ya
Replies to "@monkeytime777 i have this but was diagnosed with hereditary spastic paraplegia complex type. it was found..."
Hi Alecia!Were the Doctors able to give you treatment for your issue?I have alot of twitching and spasms along with muscle weakness.The neurologist told me it is not ALS,but I am still not sure.I wonder if part of my symptoms might be similar to what you have.I just had Genetic testing done.I am waiting to heat back from the doctor.
My former husband was recently diagnosed with HSP. He is having symptoms of double vision, dizziness, slurred speech and inability to walk, usually coming on after supper. These usually resolve in about 2-3 hours. He has been to the ER 3 times as they thought he was having TIAs. No evidence of TIA was found in the tests. Are you having any of these symptoms?? Are they part of HSP??
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Thank you! I hope you are able to get treated for your condition and are doing well