@shari715 thank you for your response. We are based in the Uk and to be honest the NHS is not much better.The waiting list seems endless.

My son has been suffering for over 15 months now and every time he had this skin issue he was sent away with antibiotics, now as it’s an ongoing issue they are looking into it in a bit more dept, however I think if we knew for sure what we were dealing it would allow us to plan, at the minute it just seems to be a waiting game and also the actual diagnosis seems to take forever. My sons GP thinks he has this condition but obviously it’s the biopsy that will confirm, although reading some of the stories on this forum it seems people are having to have several biopsies for confirmed diagnosis?? I think this is worrying.

Thank you for your kind words.

Take Care.💕