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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (174)
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@shari715

So I had a biopsy on a specific lesion which I could not see as it was on the back of my leg. I waited 10 days for the results. The dermatologist sent it out again to confirm. I think when I looked at the report 4 pathologist had seen the specimen. I then had to wait for a PET scan. Then about a week for the PET scan results. I first saw the dermatologist in February but only had a definitive answer at the beginning of May. This is not right but that is medicine in the US in 2023. Good luck with your son.

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bradders | @bradders | Nov 7, 2023

@shari715 thank you for your response. We are based in the Uk and to be honest the NHS is not much better.The waiting list seems endless.

My son has been suffering for over 15 months now and every time he had this skin issue he was sent away with antibiotics, now as it’s an ongoing issue they are looking into it in a bit more dept, however I think if we knew for sure what we were dealing it would allow us to plan, at the minute it just seems to be a waiting game and also the actual diagnosis seems to take forever. My sons GP thinks he has this condition but obviously it’s the biopsy that will confirm, although reading some of the stories on this forum it seems people are having to have several biopsies for confirmed diagnosis?? I think this is worrying.

Thank you for your kind words.

Take Care.💕

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