@tataddyp , my son is awaiting a biopsy and struggling with getting a true diagnosis.

He has similar symptoms, he gets cold hands, chattering teeth, sweats and a full on weakness and looses all his strength. Writhing a few hours of these symptoms he then gets a red patch that covers the whole side of one buttocks cheek , he then gets hard tumours under the skin in one side of the buttocks.. the doctors keep prescribing antibiotics whilst waiting for a biopsy.

We spoke to our doctor as like you it’s a waiting game, she is adamant that he has Mycosis fungoides ( T-cell lymphoma. My son is only 31 so it’s a big worry as when we have researched the condition there doesn’t seem to be any real fix or cure??? It’s strange as it comes out every 3 months then goes away, but always the same place and the same symptoms.

Please can you tell me how long you had to wait for diagnosis.. and if it was the biopsy that confirmed the diagnosis as my son has had so many blood tests but nothing shows up abnormal in these???

Desperately trying veto understand this condition and if there are quicker ways for a full diagnosis.

Thanks for reading .