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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 17 6:29pm | Replies (805)
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@tjunca

It did provide much relief BUT the side effects of Camzyos (dizziness, head spinning, feeling sluggish) were the same symptoms I had before Camzyos. So a life of my heart being better but never getting to reap the benefits due to Camzyos side effects made me decide to just do the surgery.
That and the unknown long term effects of the Camzyos. Not knowing of it will later on give me liver or kidneys issues to deal with too

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Replies to "It did provide much relief BUT the side effects of Camzyos (dizziness, head spinning, feeling sluggish)..."
katiekins | @katiekins | Feb 13 9:27am

I had exactly the same side effects sadly so had to stop the drug. I felt amazing for around a week but then the symptoms began. Left off for a week and started again but side effects reoccurred so stopped. I now feel awful so thinking of surgery. Are you having septal ablation or a myectomy? Keep well.

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