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@cblue

Thanks for suggestions. To switch I would have to take a dose early. My doctor at first wasn’t responding (odd, she was very responsive when I has vascultis..lab work which somehow ruled out auto immune cause. ), so I haven’t asked anything. However, I eventually received a call from her assistant to renew a prescription & offer me an appointment in a few weeks. I don’t how if she will respond to portal messages. I Haven’t tried since reaching the assistant last week. But especially since the end of daylight savings time evenings are worse “earlier “… The evening dose of cevimeline doesn’t work & eyes & sensitivity to sound and joint pain all increas. Sleeping is impossible.. but during the day if I keep moving.. I’m not too bad. Starting to lose hair from the hydroxychloroquine maybe? How much hair will I lose? ( female- hope not all !! !

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Replies to "Thanks for suggestions. To switch I would have to take a dose early. My doctor at..."

@cblue I really think you should call your doctor or message her thru the portal. She needs to know what goes on in the evenings. Nothing sounds right to me. (I’m not a doctor, but I can tell when someone is miserable)
Will you call or send a message tomorrow?

I’m not sure how much help this will be. I’m not sure about hair loss from the medication. I was reading last night about Sjogren’s and hair loss as I have been shedding hair for months and is now noticeable when you Google hair looks and Sjogren’s it comes up. Really hoping you feel better soon.