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Myelofibrosis*

Blood Cancers & Disorders | Last Active: Jul 7 12:31pm | Replies (114)

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@jeffrad1

I was diagnosed with MF proximately two years ago. My platelets were extremely high but we’ve been able to get them down to around 500 by taking 1000 mg of Hydrea twice a day. I’ve been having extreme pain in hands, joints and feet. Daytime fatigue and tiredness I have been extremely unbearable. I feel like mentally I am losing or starting to lose the battle. Need a good person to just discuss problems with. Thank you.

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Replies to "I was diagnosed with MF proximately two years ago. My platelets were extremely high but we’ve..."

Jeff,

Your dose of Hydroxyurea is very high. It can cause many side effects. Have you seen an MPN specialist yet? Has your doctor mentioned Pegasys?

Best wishes, Eileen

Hi @jeffrad1, I hope you saw @eileen11108's kind reply to you. I'm sorry to hear that you feel like you're losing the battle and struggling mentally. We're here to support you. How are you doing today?