← Return to HCM-ers: Introduce yourself or just say hi

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@nanakpm

Hi. I started Camzyos in May 2023 and felt better almost immediately. I could walk without angina. I continue to have more energy - daily aquafit, walking, yoga - and stopped needing a daytime nap after a couple of months on Camzyos. However my gradient is barely responding. I convinced my doctor to increase the dose from 5 to 10 mg. Started that in August. Gradient decreased from 131 to 117 - both numbers very high and my doctor says it is not a significant drop. She continues to push for myectomy. I want to try 15 mg camyos- really really do not want surgery. I am 74.

I also have reflux and can't tell whether my symptoms - which got worse in the last couple of months - are from GERD or HOCM. I am going to treat the GERD aggressively and hope for the best!

Does anyone know how long one has to be off camzyos before surgery?

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Replies to "Hi. I started Camzyos in May 2023 and felt better almost immediately. I could walk without..."

I am on Camzyos and decided to have surgery later this month. Mayo Clinic said to stop Camzyos 2 weeks before surgery.