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Fibromyalgia and Central Sensitization Syndrome (CSS)

Fibromyalgia | Last Active: Jun 25 11:29am | Replies (19)
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@fightingfibro0505

This sounds VERY similar to the symptoms I experience. I have been diagnosed with fibromyalgia, central sensitization syndrome, Raynaud’s syndrome. I have suspected Vasculitis also but no doctor seems to help me locally. I’m curious how you received your Cutaneous Polyarteritis Nodosa diagnosis? Was it from Mayo Clinic?

Thank you in advanced!

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Replies to "This sounds VERY similar to the symptoms I experience. I have been diagnosed with fibromyalgia, central..."
SusanEllen66 | @SusanEllen66 | Nov 6, 2023

@fightingfibro0505 hi, I developed a medium size lump on my right calf, that was sore, red and painful. It was not itchy.
I went to my dermatologist. His PA did a punch biopsy. Five days later I got a call that I had to meet with my doctor because he diagnosed me with the CPAN.
Fortunately for me, my dermatologist had seen CPAN, which is very rare, several times before so he knew what he was looking at when he saw my biopsy. He wanted to double check his diagnosis so he sent the biopsy to both Mayo Phoenix, and the University of Southern California Medical Center. Both places confirmed his diagnosis.

I was immediately put on prednisone, and titration was done in 8 months. However, the damage was already done to my nerves…

If you think you might have Vasculitis, your rheumatologist would be the one to help you with that.

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