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Want to learn more about Immunotherapy for lung cancer

Lung Cancer | Last Active: Nov 3 12:18pm | Replies (44)

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@rebmar

I was diagnosed with melanoma in my lungs in 2020. It was in the smallest lobe and was it was removed. My oncologist recommended immunotherapy.
I was treated with nivolumab for 4 months until I could no longer tolerate the after effects of joint and muscle pain, weakness, tiredness and inability to even think clearly. I had CT scans every 6 months, all clear until October of 2022. PET scan in November showed that it metastasized with a 3.1 centimeter on my heart. It was too risky to remove by surgery so I started a combination of nivolumab/relatlimab treatment in January 2023. CT scan in May was encouraging in that the growth had shrunk to 2.6, but new spots were found on the lungs. I continued treatment until September when an MRI found it had spread further in the lungs. Therapy has been stopped and my oncologist has given me less than 6 months to live. I went through the first 6 months of the therapy with the side effects as before, trying fentanyl, morphine, medical marijuana, etc. to get relief until I had good results with a pain patch prescribed by my pain doctor. Having been through this, I wish now that I had not done the immunotherapy. Statistics show that only about 10% experience the reaction that I had and I was one of the unlucky.
Good luck to you and I pray for good results.

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Replies to "I was diagnosed with melanoma in my lungs in 2020. It was in the smallest lobe..."

I’m so sorry to hear all that you have endured - you’re so brave! New treatments are being developed all the time. Please don’t give up the fight. I will pray for your strength. God bless!