Sorry that you're going through all this ... my only comment is that from my experience, and from what I read on this forum, most of the doctors we see are just stumped. Research is scanty, this is all new to them (and us), and the reaction from doctors seems to be either "I can't help you," or even worse: "No one else has reported this", or even worse(r?) ... "Maybe you need a shrink..." Also, the LC clinics are few, far between, and hard to get into. It's very hard to be patient while feeling so sick... this forum helps me keep my spirits up, more or less, after seven months of LC. Good luck to you.