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The decision to be on a liver transplant list or not.
Transplants | Last Active: Jul 10 10:14am | Replies (21)Comment receiving replies
How sick were you when you qualified for a transplant? Were you still able to work? My MELD is 7 and normal bloodwork. I am concerned about “too sick for life but not sick enough for a transplant.” Did you pursue living donor at any point? In your research, what were the top liver hospitals?
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Replies to "How sick were you when you qualified for a transplant? Were you still able to work?..."
“too sick for life but not sick enough for a transplant.”
Boy did this comment bring me back to my 10 years of dealing with my liver issues. I am almost 5 years post transplant (12/2018). Searching for a living donor was not on my radar then but I realize it is a possibility. I comforted myself that if I was not sick enough for a transplant then someone sicker than me was offered the life saving opportunity.
The care of my local doctors and the Mayo team kept me sane while I waited. Having a good support system - spouse, family and friends - was critical.
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Hi @hope25, I'm tagging @katebw to make sure she sees your questions. I also think that @amyintucson @gaylea1 and @athenalee might have experiences to share about “too sick for life but not sick enough for a transplant.”
You might also be interested in this related discussion:
- It's not all about the MELD Score
https://connect.mayoclinic.org/discussion/its-not-all-about-the-meld-score/
Are you on a wait list?