Thank you so much for responding! I had two rounds of Levaquin in August, along with Prednisone. The dose of Levaquin was only 250 mg. After 10 days, I was still no better. I went with no antibiotics until now, and just felt like crap.
Finally got a sputum test and was put on 750 mg of Levaquin a week ago. First antibiotic since August. No side effects noted though. No Prednisone, but my former PA had sent a prescription in for Pred, so I took it. Yesterday, my 7th day on Levaquin, I was coughing up impressive amounts of sticky mucus, not as dark as my normal, but with a teaspoon or so of blood each time. Bright red. I figured I broke a small vessel. Who knows.
I’m pretty discouraged at this point. Pulmonary doc has never suggested a nebulizer, no other treatment at all other than rounds of Levaquin. He has never prescribed Prednisone, I would go to Primary care office where I could at least be seen. Pulmonary doc only works two days a week. If you get sick, you can not get in to see him. They tell you to go to urgent care or primary care doc.
I am trying to get in to another pulmonary doc in the next town. I got the referral from primary but it is a process.
It’s a battle for sure. I’m tired of feeling sick all the time, no appetite, losing weight.
I am wondering if I am reinfecting myself too. Can Pseudo live on toothbrushes and drinking glasses etc. , will the dishwasher high heat kill the bacteria? So many things to learn about it. Meantime, I will continue to advocate for myself and keep muddling through. 😊
Thanks again for your response!
Take care, Mary