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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@carolesg

I was diagnosed with MGUS, IgG Kappa, in 2004. My free light chains have continued to increase but my Mspike has remained more or less constant at 0.4. MGUS is not benign. My immune system is non existent for example. I have gotten every COVID vaccine and my immune system doesn’t budge. Which means I now wear a mask every where I go.

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Replies to "I was diagnosed with MGUS, IgG Kappa, in 2004. My free light chains have continued to..."

Reading other posts reminded me that MGUS has also given me peripheral neuropathy in more recent years. That has caused several nasty falls. When I hear people refer to MGUS as a benign stage of myeloma, I educate them that it is anything but benign,