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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)
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@karukgirl

Welcome to Mayo Connect, Daral from Ontario! I assume you mean Ontario Canada, not Ontario, California! You mention you just started this week...I am going to assume again that you mean Camzyos? If so, maybe take a look at this:
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
This is the support group of the HOCM'rs who have started on Camzyos. There are many wonderful folks in this group who share their journey with those who just started too. It's a relatively new drug with good and not-so-good results, because we are all so different.
When did you learn you had HOCM? Did it take a long time to be diagnosed?

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Replies to "Welcome to Mayo Connect, Daral from Ontario! I assume you mean Ontario Canada, not Ontario, California!..."
daral | @daral | Nov 6, 2023

Yes Canada. Yes to drug name
Pretty much 39 years ago. Then it was apical hypertrophic Now that appears to have been wrong ( 37 years on verapamil…never any symptoms) or progressed to ventricle. Got a pacemaker / defib last year . Ben on Camzyos for five days. Not noticing much but have not tested my endurance etc.

I could still crawl under neath cars in and out 10 times in a 40 minute span with no effects before i started camzyos. Am i expecting too much ?

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