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Diagnosed with pseudomonas aeruginosa infection in my lungs
MAC & Bronchiectasis | Last Active: Jun 27 9:33pm | Replies (85)Comment receiving replies
Sounds like this is the second time you are taking the Levaquin? This time without the prednisone? Usually with Pseudo levaquin is prescribed for 10 to 14 days. How long did you take the levaquin the first time? Did it make you feel any better at all in August? Did you have any side effects? It is a strong antibiotic but easier on the system than Ciprofloxacin supposedly. Cipro usually has the best track record with Pseudo of the two. But Pseudo is very difficult to "get rid of" . Usually you can only knock it back. At any rate you really need to find a pulmo who is familiar with things like MAC and Pseudo. I have chronic Pseudo. Using a nebulizer and hypertonic saline 7% twice a day is essential.
Replies to "Sounds like this is the second time you are taking the Levaquin? This time without the..."
Irene, I would like to ask you, since I have Pseudo since Sept of 2023 and asymptomatic,
and am new to Airway Clearance, what do you think of my using 7% saline always in the morning, but sometimes using 3% saline in the evening or no saline?
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Thank you so much for responding! I had two rounds of Levaquin in August, along with Prednisone. The dose of Levaquin was only 250 mg. After 10 days, I was still no better. I went with no antibiotics until now, and just felt like crap.
Finally got a sputum test and was put on 750 mg of Levaquin a week ago. First antibiotic since August. No side effects noted though. No Prednisone, but my former PA had sent a prescription in for Pred, so I took it. Yesterday, my 7th day on Levaquin, I was coughing up impressive amounts of sticky mucus, not as dark as my normal, but with a teaspoon or so of blood each time. Bright red. I figured I broke a small vessel. Who knows.
I’m pretty discouraged at this point. Pulmonary doc has never suggested a nebulizer, no other treatment at all other than rounds of Levaquin. He has never prescribed Prednisone, I would go to Primary care office where I could at least be seen. Pulmonary doc only works two days a week. If you get sick, you can not get in to see him. They tell you to go to urgent care or primary care doc.
I am trying to get in to another pulmonary doc in the next town. I got the referral from primary but it is a process.
It’s a battle for sure. I’m tired of feeling sick all the time, no appetite, losing weight.
I am wondering if I am reinfecting myself too. Can Pseudo live on toothbrushes and drinking glasses etc. , will the dishwasher high heat kill the bacteria? So many things to learn about it. Meantime, I will continue to advocate for myself and keep muddling through. 😊
Thanks again for your response!
Take care, Mary