Undifferentiated Connective Tissue Disease turning into Lupus?
Hi! I developed an autoimmune disorder two years ago, and have been relatively stable until now. This is my first experience going into a flare, and I'm not sure what to expect. I've spoken with my rheumatologist, and have done extensive reading, but was hoping to hear from other people with Undifferentiated Connective Tissue Disease about their own experiences with flares. What have they been like for you? How long have they lasted? And did you end up needing to take steroids, or switch medications? If so, what was that like? I had to take steroids for an allergic reaction long ago, and I could barely sleep. I dread having to take them again. But I also obviously don't want to end up with worse problems because of this autoimmune condition. In my case, I have a falling C3 level, slightly low white blood count, and some increasing symptoms. It could be pointing to lupus, but I don't have a lot of the classic blood markers and symptoms of lupus. So...I'm not really sure what to think at this point. I'd be very interested to hear about your experiences if you're willing to share!
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I had a positive ANA, and followup ENA showed Mixed Connective Tissue Disease which contains Lupus and 2 others that all overlap. So the test for Lupus was negative and came with a paragraph saying it was included in a combination disease. It was the first I'd ever heard of MCTD
Does anyone have feet and ankle cramps . I've had mctd 6 Yeats and the cramps are getting more consistent
Drink tonic water to help! I buy the diet version but stir in cranberry or orange juice to make it taste better. The quinine in the tonic water is the ingredient that causes this to work! Best wishes!!