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DiscussionHCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)Comment receiving replies
Replies to "Daral. From Ontario. Just started this week. Not seeing any great difference"
You have been on Mavacamten/Camzyos for one week? I didn't see any results for almost two months. Hang in there!
Welcome to Mayo Connect, Daral from Ontario! I assume you mean Ontario Canada, not Ontario, California! You mention you just started this week...I am going to assume again that you mean Camzyos? If so, maybe take a look at this:
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
This is the support group of the HOCM'rs who have started on Camzyos. There are many wonderful folks in this group who share their journey with those who just started too. It's a relatively new drug with good and not-so-good results, because we are all so different.
When did you learn you had HOCM? Did it take a long time to be diagnosed?