So, I’m not the only one who has shaky legs when I am brushing my teeth etc. Thank you for mentioning that! I told my doctors and they look at my like I’m crazy.
I share fibromyalgia, polyneuropathy, and other autoimmune diseases with some of you. These “annoyances” have really turned my life upside down and made me pretty much housebound.
I just turned 74 this week. Fibromyalgia has been with me for about 40 years at least. The worst of everything started after I had the flu in March 2015. My immune system went haywire, overreacting to the virus and started attacking me. December of 2015, I was diagnosed with Cutaneous Polyarteritis Nodosa. It’s a form of Vasculitis. It inflamed my arteries and that in turn damaged my small fiber nerves giving me neuropathy.
Things have continued to get progressively worse. Now I have polyneuropathy, Raynaud’s disease, kidney disease, and occipital neuralgia.
My vision has become blurry, and I’m seeing double in most directions. The ophthalmologist has said I need to wait and see, meanwhile my balance is off and driving is off the table.

Fibromyalgia causes extreme fatigue. I’m tired of being tired. I asked my neurologist if he could do a sleep study for me because I wanted to make sure I didn’t have sleep apnea. I did the overnight sleep study and it showed that I have idiopathic hypersomnia. Huh? Turns out it is also referred to as Narcolepsy 2. My brain doesn’t go into a deep sleep at night like it should. Therefore, I am never rested. I’m the walking dead during the day…

Sorry for the “book” I can relate to so much you guys have written. Only one thing, I can’t tolerate any of the pain medicines, so I stick with Tylenol.