Did anyone undergo Car-T therapy for B cell lymphoma?

Posted by 2012lemi30 @2012lemi30, Aug 21, 2017

Did anybody on here undergo car-t therapy

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

@ronkampner

Bob, you are lucky that your IGG hovers around 400. Mine will keep dropping without the treatments Keep doing what works because that’s all we have. I am happy in my life right now and intend to stay that way. I have grandkids that insist I play golf with them. I have to stay this way. Haha. You too.

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Hi Ron, thank you for the information. I am so glad your grandkids are dragging you out to the golf course.

How are you shooting? Have fun.

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@grandpabob

Hi Ron, thank you for the information. I am so glad your grandkids are dragging you out to the golf course.

How are you shooting? Have fun.

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Well Bob, I’m shooting my regular 95-105. My 11 year old grandson beats me 70% of the time. My fault, I started him when he was 8. Very proud of him. 😃

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@peggybyses

Yes, I’m June 2023

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Hello @peggybyses - that is not long ago, how are you feeling?

I found that several months after therapy it was a real learning curve for my body to adjust while it mended.

So glad to hear you were able to receive this therapy.
Stay safe.

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@grandpabob

Hello @peggybyses - that is not long ago, how are you feeling?

I found that several months after therapy it was a real learning curve for my body to adjust while it mended.

So glad to hear you were able to receive this therapy.
Stay safe.

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It has been tough. As someone said to me “you don’t know what tired is”. So true.
I have worked hard, physical therapy 2 a week, just starting a new program to go with that at hospital for cancer patients

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Oh so true Peggy. Glad to hear you are working at PT. I found it beneficial to eat super healthy when I was trying to regain strength and activity. Good luck with the new program.
What do you find the toughest?

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