← Return to Severe Allergy to Paxlovid

Discussion

Severe Allergy to Paxlovid

Post-COVID Recovery & COVID-19 | Last Active: Feb 10 9:20pm | Replies (41)
Comment receiving replies
@hral

Thank you for the kind words. I've tried it all. I have a lot of allergies, so I can only try products that are on my ACDS CAMP app safe list, which makes this all harder. So basically, I put ice packs on my face until the heat from the hives melts it and then I have to rotate it out. Which means I'm not sleeping either. I appreciate the suggestions. Thank you.

Jump to this post

Replies to "Thank you for the kind words. I've tried it all. I have a lot of allergies,..."
Colleen Young, Connect Director | @colleenyoung | Nov 7, 2023

@hral, I'm sorry that you are not getting the answers that you need from your doctors. You might consider consulting with the EDS specialists at Mayo Clinic and the Mayo Clinic Ehlers-Danlos Clinic. Learn more here:
- Ehlers-Danlos Syndrome Blog https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/

This article might provide more insight:
- Mast Cell Activation in Ehlers-Danlos Syndrome https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/mast-cell-activation-in-ehlers-danlos-syndrome/

Am I reading correctly that you've been dealing with this severe reaction since May 2022? Did you stop prednisone?

VIEW AND REPLY