← Return to Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

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@northoftheborder

At first my onco team told me 5 years average survival starting with Firmagon + Erleada (maybe a couple extra because I'm relatively young and strong), but by the time I hit 18 months still with undetectable PSA and only trace testosterone, they tossed out 10+ years as a possibility.

As time goes on, the odds change because things have or haven't already happened. Now that I've gone 25 months not only tolerating Firmagon + Erleada well, but showing no hint of progression in tests (most recently a cystoscopy), symptoms, or bloodwork, my odds have shifted a bit.

That said, I know things can change really fast. I saw that happen to a friend last spring and summer — his lymphoma had been responding well to treatment, them suddenly it wasn't. We have to learn to live with uncertainty, and that's a big emotional and spiritual challenge.

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Replies to "At first my onco team told me 5 years average survival starting with Firmagon + Erleada..."

That is right. It is possible that these stats come from trials where their cut off is PSA 0.5. There studies, as well as the experience of oncologists that when the PSA goes below 0.2 or even 0.1, it is very much different. The scientific explanation is that at that level, very few malignant cells remain, if at all. The important point is it stays stable at that level. So regular monitoring is needed to make sure. I hope that helps.
Dont mind me. I am just another layman trying to make some sense of the hole thing.

Thanks for sharing your experience. You are correct about the uncertainty of life after diagnosis. The videos are more about relief from side effects. I may come to need that in the future. @72 your 10-12yr tolerance of adt would do me a lot of good. Thanks bill