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@award, I moved your posts about being recently diagnosed with MGUS only 2 years after your husband was diagnosed to this existing discussion:
- Does anyone else have MGUS? https://connect.mayoclinic.org/discussion/mgus-diagnosis/
I did this so that you can easily connect with many knowledgeable and supportive members like @pmm @mjlandin @gingerw @ea1 @raye @whitepine66 @mommatracy5 @leslie2121 @sharon55 and many more.
Despite your doing research when your husband was diagnosed, I get what you mean when you say there is still so much to learn and understand. It's overwhelming! But one can only take one step at a time. And now you have a support group ready to walk beside you, answer questions, calm concerns, and help you find out what you need to know.
You're not alone.
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Welcome to this MGUS group, @award. I was first diagnosed with IgM kappa MGUS eight years ago. That was a time which coincided with my highest weight ever. Subsequently I’ve lost 10% of my weight by being careful of intake. No latest weight loss gimmicky RX for me. I don’t trust their side effects.
You will want to find a hematologist you feel comfortable with. After trying four different ones, the fifth was a charm and I adore him.
All of us in this MGUS forum may want to contribute a couple of vials of blood twice annually to the Dana Farber Cancer Institute’s PCROWD Study. They send a kit for me to take to my hematologist for blood draws to then be Fedexed back to DCFI. It feels good to participate in being proactive by contributing to future knowledge about MGUS with small gifts of my blood. I believe this research will eventually help others be less alarmed when they are diagnosed.
Wishing you well!