Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@hazelblumberg

I'm sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze--except if a hurricane is passing through--which just intensifies the misery. I do indeed miss winter. I'm originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

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Hazel, Marie here. Well guess what? I don't know how to swim either. I have had so many lessons I should be in competitions ( yeah at 72?) but I am just afraid.
I wear a swim belt that holds you up in the deep end and I also hold on to a noodle. And my friends and I stay in the deep end, near the side and we chitchat for 2-4 hours in the pool and have a great time. I have had a few panicky moments if someone bumps me but I love the water. We don't swim around we just float around each other. I can't swim anyway because of my back pain and I had a knee replacement in April.
You are faaar north. It must be cooler there than Palm Beach where my husband and I would rent a condo which we haven't done the past 2 years because now the owners want to rent 4 months and we only want 2-3 months. And I am friendly with everyone but they are clicker and wouldn't be my friend. Their loss. Ha ha Anyway you made me forget my pain for awhile, thank you.

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@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I'd eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn't even touch it.

My dentist then sent me to a physical therapist, who didn't listen to a word I said. I came in on a "good" pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said "No. My pain level is now about 7.5." He said he didn't believe me. He attempted to push me to go to his outside clinic to get "magnet therapy," and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I'd ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended--however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I'm going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I'm self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I'm in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I'm not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I'm more than willing to purchase one. I'll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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Jim, It might be a good idea to see either what they gave you for anesthesia and/or what they gave you for pain. I got my records from the hospital for the next time I should need surgery they use a different kind of anesthesia and not DLaudid for pain just so it doesn't happen again but they can't make any promises that it won't happen again because the older you get, you metabolize meds differently. Keep in touch, Marie. I just read your post again and saw that it was Lyrica that did it to you. You should make sure everyone you go to know you can't take Lyrica. I can't take it either it made me paranoid. I hope I have been some help to you. I also can't take other meds either because of the same reaction.

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@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I'd eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn't even touch it.

My dentist then sent me to a physical therapist, who didn't listen to a word I said. I came in on a "good" pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said "No. My pain level is now about 7.5." He said he didn't believe me. He attempted to push me to go to his outside clinic to get "magnet therapy," and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I'd ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended--however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I'm going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I'm self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I'm in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I'm not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I'm more than willing to purchase one. I'll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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@marield65

I have a list of 6 meds I'm allergic to, and every doctor I see knows them as soon as I check in.

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@hazelblumberg

I'm sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze--except if a hurricane is passing through--which just intensifies the misery. I do indeed miss winter. I'm originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

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Never say someday. Do it now. I have lived in New England for 81 years & the Fall is my favorite time of year

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@hazelblumberg

I'm sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze--except if a hurricane is passing through--which just intensifies the misery. I do indeed miss winter. I'm originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

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Yeah, that's why I like living on the Oregon coast. We get less rain than New York City, and 90% of our time is between 40F and 70%.

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@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I'd eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn't even touch it.

My dentist then sent me to a physical therapist, who didn't listen to a word I said. I came in on a "good" pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said "No. My pain level is now about 7.5." He said he didn't believe me. He attempted to push me to go to his outside clinic to get "magnet therapy," and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I'd ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended--however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I'm going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I'm self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I'm in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I'm not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I'm more than willing to purchase one. I'll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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Jim, this is such an excellent idea!

I carry a list of all the meds I'm on, whether prescription or OTC, in my purse. I also wrote drugs I'm allergic to on there. I do need to add pain meds, you've made me realize. The only ones I can tolerate are tylenol + codeine and vicodin. All others make me violently ill.

Thanks again for the superb advice!

Hazel

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@hazelblumberg

I'm sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze--except if a hurricane is passing through--which just intensifies the misery. I do indeed miss winter. I'm originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

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Oldkarl, I envy you your climate! Heat, humidity, and I do NOT get along. I've lived in Florida for 25 years now (the longest I've ever lived anywhere), and I thought it'd get easier to live with the climate. Nope. Actually, the climate here has changed radically in the past 25 years. When we first moved here, in the summer it never got over 92 degrees. Every afternoon in the summer, we had a late afternoon thunderstorm, which cooled everything down. The roads steamed! Now, the temperatures go up into the three digits, and that late afternoon storm has disappeared. Winters have gotten warmer. Fall and spring, which were lovely, have gotten so much shorter that they're barely noticeable.

My husband's applying for a job in Indianapolis that just came open and that interests him. I would love to be back in the Midwest again! My only regret would be the distance to the beach. Even though I don't know how to swim, I do love being by the water and wading in it and hearing the wonderful sound of it.

Hazel

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Peach, the real downer here is that the closest real hospital with pain management, etc, is almost a hundred miles away. And we have a lot of speeders here, not real tourists, but folks who think they can drive 80 mph along the coast on roads built for 35 mph. Then they pile up on a 15 mph curve, at one of our most beautiful spots, and complain about the bad roads and slow drivers. If they want to drive 80, they should go over to I-5 which runs from Vancouver BC to San Diego.

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@hazelblumberg

I'm sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze--except if a hurricane is passing through--which just intensifies the misery. I do indeed miss winter. I'm originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

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We love New England. We took our motor home up into Main and back across NH and VT. Beautiful in the fall.

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@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I'd eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn't even touch it.

My dentist then sent me to a physical therapist, who didn't listen to a word I said. I came in on a "good" pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said "No. My pain level is now about 7.5." He said he didn't believe me. He attempted to push me to go to his outside clinic to get "magnet therapy," and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I'd ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended--however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I'm going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I'm self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I'm in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I'm not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I'm more than willing to purchase one. I'll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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I take the time to check my records on my healthcare system each month, as well as carry my own list. When I check into a clinic or hospital or whatever, the list is available to everyone. Of course, my wife makes sure I do it right. I am getting a little foggy between the ears.

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