← Return to Anti-tranglutaminase-6 antibody test - Gluten Sensitivity Test

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@tumbleweed66

Hi there, I'm just seeing this, I registered just to reply to you. Did you ever find a US lab that does the TG6 test? I was diagnosed with Sporadic Idiopathic Cerebellar Ataxia in 2017 by neurologists at the University of Michigan. They ruled out genetic and can't identify the cause of my ataxia, so they just call it Origin Unknown. Honestly, they don't seem to be trying too hard to find the root of it, and these geniuses don't believe that Gluten Ataxia even exists. I'm pretty sure that I have GA, and like you I have studied Prof Hadjivassiliou's research, which speaks to me. I'm going to go gluten free soon, but I want to take the TG6 test first to find out what my levels are and then retest after being gluten free for a year. But I cannot find a lab here. I'm currently communicating via email with the Ataxia Centres UK to see if they can work with an American. They're checking but no word yet. Did you find anywhere here?

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Replies to "Hi there, I'm just seeing this, I registered just to reply to you. Did you ever..."

Hi,

I am very similar to you. Diagnosed in 2023 and suspecting I have a sensitivity to gluten. U.S neurologists don’t have any knowledge of gluten ataxia research. I am gluten free now since November. I am looking to go anywhere for a tg6 test. I am not celiac, have tested negative for other gluten markers. But have a strong feeling due to other symptoms. Did you have any luck with finding a way to get the tg6 test. I am a Canadian in North Carolina.