Need support re: my SIBO treatment

Posted by skim3737 @skim3737, Nov 2, 2023

Hello. I'm starting Xifaxan and neomycin on Monday for my methane SIBO and I'm really, really nervous. Any tips or advice? TIA!

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Just finished the same treatment for 14 days. Had a constant headache, although not severe, it was unpleasant. Had a rough time with stomach aches and pains for the first 5 or 6 days. It was a long haul, but I got through it. Feeling much better now. Bloating has decreased and don’t feel constantly tired as I did during the entire treatment. Trying not eat any processed foods, (that’s hard to do) but overall I am better. Hope your treatment helps you too! Good luck!!!

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@parrotlady

No I’m not taking any other drug with it.

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Okay. Thank you. I hope you feel better!

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@nova1976

It worked for me. Had ileocecal valve removed due to adhesions

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That's so great to hear! I also no longer have an ileocecal valve due to adhesions causing bowel resection surgery. Did you have any side effects during the two week treatment? I'm hoping to avoid nausea by taking with food. I'm kind of anticipating diarrhea but that would actually be welcomed since I'm constipated most of the time.

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@rsy

Just finished the same treatment for 14 days. Had a constant headache, although not severe, it was unpleasant. Had a rough time with stomach aches and pains for the first 5 or 6 days. It was a long haul, but I got through it. Feeling much better now. Bloating has decreased and don’t feel constantly tired as I did during the entire treatment. Trying not eat any processed foods, (that’s hard to do) but overall I am better. Hope your treatment helps you too! Good luck!!!

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Thank you so much for your response! It's really helpful to have an idea of what side effects to expect during treatment but if the end game is improvement in my methane symptoms, I can muscle through it I believe. I'm so happy that you're feeling better! This SIBO is miserable and I've been dealing with it for 9 years. Have a blessed weekend!

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@skim3737

Thanks for your response. Are you taking neomycin with it? That's the one I'm most nervous about. I've done a round of Xifaxan alone before and didn't have any problems.

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Ask your doctor about substituting need for the neomycin. Apparently they do the same thing without side effects.

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@samclembeau

Ask your doctor about substituting need for the neomycin. Apparently they do the same thing without side effects.

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Do you mean neem? I did a six week course of treatment with allicin and neem and didn't get any change in my symptoms.

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@skim3737

Do you mean neem? I did a six week course of treatment with allicin and neem and didn't get any change in my symptoms.

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Yes. Auto correct. neem.

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@samclembeau

Yes. Auto correct. neem.

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That's what I was thinking. Thanks for your help.

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Hello,

I took neomycin for SIBO last year. My stomach was decently messed up for the 4 weeks, but not noticeably more so than being on any conventional antibiotic. No issues with nausea but of course YMMV.

You may already know about this "trick" for treating SIBO but during the first 1-4 days just eat however you consider "normal" to be, and then past that start adding in food that you have been avoiding due to SIBO. The idea is to let the bacteria feast so that they become more susceptible to the drug (versus the unfortunate situation where they remain dormant and stay around to repopulate afterwards). Good luck!

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@gboi

Hello,

I took neomycin for SIBO last year. My stomach was decently messed up for the 4 weeks, but not noticeably more so than being on any conventional antibiotic. No issues with nausea but of course YMMV.

You may already know about this "trick" for treating SIBO but during the first 1-4 days just eat however you consider "normal" to be, and then past that start adding in food that you have been avoiding due to SIBO. The idea is to let the bacteria feast so that they become more susceptible to the drug (versus the unfortunate situation where they remain dormant and stay around to repopulate afterwards). Good luck!

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Thank you so much for your response. That's a lot of really helpful info. You mentioned your stomach being messed up for 4 weeks. Were you on neomycin for 4 weeks? And did you take it with Xifaxan/rifaximin?

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