← Return to Head and Neck Concerns in EDS/HSD

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@nial1n

@colleenyoung, thank you for your reply & links. While I’d love to be able to speak to a Mayo EDS clinician, I don’t discount the knowledge of fellow EDS patients. We’ve had to become our own experts. I have suspected that the TMJoint is involved w/this. If not the tympanic bone. Possibly both. There’s several bones/joints that come off the temporal plate, especially in my problem area of right behind, inside & below my right ear. I have the dental manifestations (my teeth have 3 roots not 2 that are extremely long & the teeth are literally cracking & disintegrating w/out any cavities or other obvious, normal causes) & TMD symptoms. I have intermittent facial numbness & facial drooping on the right side w/negative stroke eval. So your links have merit. I have an ER visit follow up w/a hospital neuro, so hopefully this dr will listen to me & consider this research. God willing, he knows about EDS. It’s exhausting being complex, isn’t it? Thank you very much for giving me your time. I sincerely appreciate it.

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Replies to "@colleenyoung, thank you for your reply & links. While I’d love to be able to speak..."

@nial1n, to consult with Mayo EDS experts, please submit an appointment request here http://mayocl.in/1mtmR63

Do you know about Dr. Knight and the EDS Clinic at Mayo? https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/tab/history/#ch-tab-navigation