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Hello, I was diagnosed with Graves’ disease a few months ago. Was placed on 30 mg methimazole. After 2 months of medication . My levels on September 8 2023 were TSH- 1.747 FreeT3 2.4 & FreeT4 .5 I experienced every side effect listed. Felt as if my body was shutting down. Endocrinologist said to remain on the 30mg. I see my primary care dr told him my symptoms he rushed ordered another panel October 26 TSH-7.446 FreeT3 2.3 & FreeT4 .7. My Dr reduced the daily dosage of methimazole to 20 mg a day. I’m still experiencing pretty terrible side effects. I have heard nothing from my endocrinologist. My endocrinologist never ordered the additional blood panels that I think actually confirm the auto immune Graves’ disease diagnosis. However both doctors mostly talk about radioactive ablation. I disagree with this idea at this time for several reasons. For one the blood panels that were ordered seems as if my thyroid is in the hypo state. Wondering if staying in the hypo state is actually creating more damage? Also I think I need to find a different endocrinologist. The wait time for appointments is concerning.
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I can tell you about my experience with Graves’ disease. It may or may not be applicable to your situation. I was diagnosed with Graves’ disease (hyperthyroidism) in 2001. I was prescribed methimazole. I don’t recall any side effects with it. My endocrinologist did not feel that radioactive ablation was a good option for me. She also explained that sometimes over time the hyperthyroidism can change to hypothyroidism. In 2005 I had a pancreas transplant due to brittle, uncontrollable diabetes (different ailment, different story). At that time the methimazole medication was discontinued because it presented an interaction problem with the immune suppression meds required for being post transplant. At present I no longer have Graves’ disease. My endocrinologist continues to monitor my thyroid levels and I have not reversed to having hypothyroidism. I think diagnosing, monitoring and treating thyroid conditions can be tricky. Have you had anymore thoughts on finding a new endocrinologist?