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Does anyone have chronic myeloid leukemia (CML)?

Blood Cancers & Disorders | Last Active: Feb 14 4:38am | Replies (64)
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@colleenyoung

Hi @ilahi, I'd like to add my welcome along with @pam62. I'm also tagging fellow CML-ers like @billybee @suzie71 @annareenu @ericloomis @bobmon @quita123 to join the discussion and share their treatment experiences with you.

You may also be interested in joining this support group:
- Adolescent & Young Adult (AYA) Cancer Support Group https://connect.mayoclinic.org/group/adolescent-young-adult-aya-cancer/

Rameez, cancer indeed takes its toll both physically and emotionally. Would you mind sharing what challenges you're finding hardest today?

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Replies to "Hi @ilahi, I'd like to add my welcome along with @pam62. I'm also tagging fellow CML-ers..."
suzie71 | @suzie71 | Nov 2, 2023

I do not have any issues anymore. I was diagnosed in 1998 with CML and after 18 years of taking Gleevec I had to stop due to bad edema throughout my body and eyes. I was undetectable since 2002, but stayed on my Gleevec. I am now almost 6 years of Treatment Free Remission this coming Feb. I just get monitored every 6 months to be sure I am still PCRU. The Invention of these TKI drugs has saved many a life. Anyone can e-mail me at anytime if they need some support of any kind.

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