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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 4 days ago | Replies (807)Comment receiving replies
Replies to "I've been on Camzyos for 30 days. I have HoCM , septum = 16-17mm. No miraculous..."
You are the first post I have read that had your dose lowered after the first echo…me too. Since our gradients went below 20, the recommendation is to lower the dose. I hear we are called “rapid responders” and we may be metabolizing the medication differently. I am however disappointed that I don’t feel my symptoms have improved much. My fatigue and shortness of breath while climbing stairs has not changed much. Does anyone know if improvement in symptoms can lag behind the improvement of our cardiac numbers?
I I have been takingcamzyos for almost 3 months now and the obstruction has completely gone
Welcome @williampconley! I am so glad you are here and shared your Camzyos story with the group. You must feel pretty happy about those results from your echo. There a so many great members on here who share your same story, and they have been so helpful to one another in the ups and downs of Camzyos. I hope you do well on the lowered dose, and thankfully you have another echo coming up in three weeks. When were you diagnosed with HOCM?