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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 22 2:38pm | Replies (736)
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@karukgirl

Ahh, so you are still blind...that must be frustrating, but at least you know why you haven't heard. Not that that is helpful to you right now, right? So what is your plan, do you start Camzyos now? There are so many good stories here about it. Some not so good either, but at least you will be in good company.

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Replies to "Ahh, so you are still blind...that must be frustrating, but at least you know why you..."
markmayo | @markmayo | Nov 1, 2023

I am planning to try Camzyos. I didn't feel at all different before, during, or after the clinical trial so I think I was placebo. When he did screening exam for the trial he said at that time "he wouldn't recommend referral for septal reduction". I'm hoping Camzyos and losing 100 lb will help me get around better without open heart surgery. So far I'm down 20 lb in 2 months.

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