Hello, I was diagnosed in Dec 2013, I've only had chemo. The first round went well and with little discomfort other than the loss of some taste and smell. Ist round was just cladribine.
2nd round some 5-6 years later, I was given some rituximab but had a bad reaction to it. No one has been specific about the reaction and how it affected nerves in my shoulders. I finished my week with just the cladribine. The use of my shoulders came back and I'm back to playing hockey and golf.
HCL can be managed.