I've been having the painful sitting issue for over 7 years. Like you, I have been to every imaginable specialist. Nothing. Sitting is very painful. Standing has become more painful. The only time I have minimal pain is when I am lying down. Fortunately, I get decent sleep. The only crazy thing is this: if I sleep with both feet under the blankets, there is a good chance that my right big toe will begin to feel like a hot spike is being driven into it. If I sleep with my right foot sticking out from under the covers, it never happens. Now, has anyone else experienced such a crazy thing? This just started within the last year.