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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 22 2:38pm | Replies (736)
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@markmayo

The coordinator finally replied and said it hasn't been unblinded yet and may be a couple years. She said when it is unblinded they will try to contact everyone.

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Replies to "The coordinator finally replied and said it hasn't been unblinded yet and may be a couple..."
Debra, Volunteer Mentor | @karukgirl | Nov 1, 2023

Ahh, so you are still blind...that must be frustrating, but at least you know why you haven't heard. Not that that is helpful to you right now, right? So what is your plan, do you start Camzyos now? There are so many good stories here about it. Some not so good either, but at least you will be in good company.

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