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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Replies to "Is anyone else on CAMZYOS? If so how does it make you feel."
Hello @dwc62, I'd like to add my welcome to @karukgirl's. I moved your discussion and combined it with the discussion @karukgirl shared, titled: "Anyone take new drug Camzyos (mavacamten) for HCM?
"- https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/.
I did this so you could meet the many members sharing their experience taking Camzyos like @newtosohcm and @whidbey.
@dwc62, if you are comfortable sharing, were you recently prescribed Camzyos or are you just trying to learn more about it before you start a new medication?
Welcome @dwc62 . Lots of supportive people here to bounce questions and concerns with. I just started Camzyos exactly 5 weeks ago today. So far I'm one of the lucky ones who have had only positive side effects. Within just a couple days my symptoms were starting to vanish, and since the 2 week point I have not experienced a single instance of palpitations, dizziness, chest pain, or any of the other things that had been dogging me for 17 years. I now just live in fear that this is too good to be true and Rod Serling is going to jump out from behind a bush and say "just kidding." Seriously, if it continues like this, it's a miracle drug for me. If you are on this path, I hope you have the same results.
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
Hi back at you @dwc62 and WELCOME to Mayo Connect!
I have posted a link for you regarding all things Camzyos here on Mayo Connect. Take a look around that support group and you will learn many things Camzyos related. There are a lot of new members in this support group, as Camzyos is relatively new on the scene as a treatment for HOCM (hypertrophic obstructive cardiomyopathy) and there is success with it's use and some failures as well. Are you on, or being considered for Camzyos?