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← Return to Joint Pain after Organ Transplant
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Joint Pain after Organ Transplant
Transplants | Last Active: Apr 18 1:25pm | Replies (79)Comment receiving replies
Very helpful!! Where was your joint pain primarily? i suddenly had bilateral pain in my knees about 10+ months after surgery and now it's both my feet too for the past 4-5 months. Hurts my feet on any hard surface and frankly feels like some sort of microfractures on the bottoms, but idk. We're they only able to see with the MRI? Just a regular MRI? I only took tacro for 4 months after transplant, but now cyclosporine for 16 months, and myfortic & prednisone the whole time. Can you tell me more about CIPS? Thanks so much.
Replies to "Very helpful!! Where was your joint pain primarily? i suddenly had bilateral pain in my knees..."
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I’m so sorry you’re struggling with this. My ortho researched it and CIPS is usually in the lower extremities, but in extreme cases can be all over the body. I had pain in almost all my joints - knees, hips, feet, but also elbows and shoulders. It will show up on a full body bone scan. Mine did an MRI of my knees and feet to diagnose.
Like Tacrolimus, Cyclosporine is also a calcineurin inhibitor. There have been studies where they tried swapping out one for the other with limited success.
If your pain is CIPS, I hope you start seeing relief soon. Mine was at its worst for 8 months, then started to improve. Be careful with your feet. It did go away completely after about a year, but I was very prone to stress fractures until it did.