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Meeting up with others who are having Proton Treatment

Prostate Cancer | Last Active: Mar 25 7:26pm | Replies (54)

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@jc76

jb2buckwater, I chose proton beam therapy at UFPTI. Mayo Jacksonville only offered photon. Even though Mayo Jacksonville has had excellent results with the photon I wanted to do everything possible to reduce the damages affects of radiation as I could.

I came to conclusion with my primary care doctor concurring if doing proton would help reduce radiation damage that is the path I was going to choose. Both proton and photon have the same cure rates. The main difference is that proton releases very little radiation going in and NONE coming out past prostrate.

Photon cannot do this and passes through body, prostrate and out the other side of body.

You will read a lot of pros and cons of doing both. But you are the boss of your treatments and if you do research, get a couple of professional medical opinions, you chose what is best for you.

One thing I will mentioned is try to have the Decipher test done, PSMA and a bone scan.
Decipher will define the risk of your cancer metastasizing. You mentioned having intermediate. That was my initial prognosis but after Decipher was reduced to low risk. My Gleason worst score was 3+4=7.
PSMA will show if cancer confined to prostrate.
Bone scan will determined if spread to bones.

I did not know about Mayo Clinic Connect (MCC) back when I started researching treatments. I learned about these additional test through MCC. if I had known about them I would have asked for them right away. I did have all of them done but would have really helped knowing about them initially.

Good luck!

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Replies to "jb2buckwater, I chose proton beam therapy at UFPTI. Mayo Jacksonville only offered photon. Even though Mayo..."

jc76,
Smart. You did your work... researched, evaluated and made a choice to treat. I think you did the right thing and can now only wish you the best success in your desire to cure this. Many no longer even to name Gleason 6 as "Cancer". I tend to agree but due to my high PSA, 10.5, figured I should treat now rather than wait. All treatments have some risk but Proyon Beam seems to be least likely to cause damage outside the prostate.
Best Wishes, Full Recovery!