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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)
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@karukgirl

Hello Claudia @cwarren29860 , and a big WELCOME to Mayo Connect! I am so glad you found this site...you will learn a lot from other members with your same condition...like me 🙂
I had a septal myectomy and papillectomy at the Mayo in Rochester three years ago. If you want, feel free to ask me anything...anything at all. If I can help alleviate some of the fear the goes along with being diagnosed with HOCM and finding out you need open heart surgery I would be happy to do so. Take a look around here...there is a lot of information. When did you find out you had HOCM? How long did you have symptoms before you were diagnosed?

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Replies to "Hello Claudia @cwarren29860 , and a big WELCOME to Mayo Connect! I am so glad you..."
cwarren29860 | @cwarren29860 | Oct 29, 2023

Hi Debra,
I had symptoms going back ti at least 2015 but was not fully diagnosed until 2018. My Dr at Mayo Jacksonville did a cardiac cath on me in March to see if I was a candidate for septal ablation and I was not. The next step is myectomy due to my very high gradient and muscle thickness.

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