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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Elizabeth Park | @lizer | Jul 13, 2017

I'm Elizabeth. I've had fibromyalgia since 1998. In the last few years, I've developed osteoarthritis and spinal stenosis. I am married with four adult children and a wonderful, caring husband. We also have a wee dog, Bella, who forces me outside for walks twice a day. Lately, managing the FM symptoms has seemed like a full time job and I'm in need of some serious motivation.

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5 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 13, 2017
In reply to @leticia "Good morning ladies, I am new to this group, but see myself in all your posts...." + (show)
@leticia

Good morning ladies, I am new to this group, but see myself in all your posts. I have been dealing with Fibro for twenty years. Nine years ago I was diagnosed with breast cancer. I Had several surgeries along with six rounds of chemo. Presently, I have daily chronic pain -- lower back (if I overdo It) arthritis in both knees (the last six years I've been getting either steroid shots, or the sinvisc shots), neuropathy in both my feet (from chemo). My overall pain has gotten worst since chemo (I'm sure aging has also been a contributing factor too). Years ago I took between four - six Percocet a day. For almost two years now, I only take half a pill in the mornings. As most of you can imagine, dealing with all this starts to affect your emotional and mental wellbeing. I've seen counsellors at several different times. I do yoga and have been for at least 15 years now, I get massages every other week, and currently started acupuncture for my neuropathy (I feel fortunate to say -- it's working). I have been dealing with all this for so many years now, and I can honestly say I'm in a bad place emotionally right now. I take Ativan once a day to help wth anxiety stemming from all this. I am blessed to say I have a supportive husband in all this although I was never blessed with children. All my family member live far away. The friends I do have, I don't like to burden them too much with my situation. The fact is that my life very much has become "dealing with my health concerns with much resting in between". Not too many healthy people want to listen to your issues. It's a bad place to be. Thank you for listening.

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Welcome @leticia and @ayankeeinnm.
I invite you to explore the conversations in the Chronic Pain group as well as related groups, such as Bones, Joints & Muscles, Breast Cancer and Mental Health. You'll find the directory of groups here: https://connect.mayoclinic.org/groups/

Here are a few specific conversations you may be interested in joining:
- fibromyalgia pain https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/
- What Distracts You From the Pain? https://connect.mayoclinic.org/discussion/what-distracts-you-from-the-pain/
- Anyone here dealing with peripheral neuropathy? https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/
- Has anybody had an implantable neurostimulator for chronic pain? https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/
- Multiple Sclerosis (MS) - please introduce yourself https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/

Happy CONNECTing.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 13, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hi Jim @powerl2017,
What did you learn at the seminar on stem cells? How did you evalution go?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 13, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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@powerl2017, @jenapower, @19lin
The Center for Regenerative Medicine at Mayo Clinic offers a free telephone Consult Service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.

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jenapower | @jenapower | Jul 13, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Thank you for asking that Jim. I'd love to also hear cause I only have the information I collected. Jennifer

REPLY
jenapower | @jenapower | Jul 13, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Thank you so much Colleen! That's exactly what I needed. Asking every source I know for information because I don't want to do something stupid, but I know it takes the FDA a long time to approve things. Love to be in a trial. I will read all of that and call the information line thank you so much, Jennifer

REPLY
jenapower | @jenapower | Jul 13, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Not having much luck with computers today. I just use your link and went everywhere I can find, could find only a general number, specific numbers for problems I'm not talking about, I found no consult phone number for general questions unless it's just the general line.

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 13, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Jena, the number should be 1-844-276-2003. Did it not work?

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 13, 2017
In reply to @lizer "I'm Elizabeth. I've had fibromyalgia since 1998. In the last few years, I've developed osteoarthritis and..." + (show)
@lizer

I'm Elizabeth. I've had fibromyalgia since 1998. In the last few years, I've developed osteoarthritis and spinal stenosis. I am married with four adult children and a wonderful, caring husband. We also have a wee dog, Bella, who forces me outside for walks twice a day. Lately, managing the FM symptoms has seemed like a full time job and I'm in need of some serious motivation.

Jump to this post

Welcome Elizabeth,
So good to meet you. Here are a few discussions I think you'll be interested in joining.
– fibromyalgia pain https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/
– What Distracts You From the Pain? https://connect.mayoclinic.org/discussion/what-distracts-you-from-the-pain/
- Treating osteoperosis https://connect.mayoclinic.org/discussion/hi-im-new-to-the-site-and-am-interested-in-treating-osteoperosis/

REPLY
jenapower | @jenapower | Jul 13, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hey I'm a dumb bell, the phone number is at the bottom of her link. I did speak to them and because I'm in California and they're in Rodchester Minnesota they're pretty much gone for the day, so there's a 0-3 hour time difference depending on where you're located.
844-276-2003

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