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Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: May 26 7:04am | Replies (251)

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@lelah76

Hi guys,I am writing from Serbia,we have no groups,forums,or any knowledge about this.It started a long time ago as something that looked like a nasty rash,but the skin was also bumpy.It was in summer,I was standing a lot,it was also very warm,so I thought that it was a reaction to some med together with the sun,standing...The next year I was ok,but I was also not on my feet a lot.In 2016 I had my first ulcer,a small one,together with a lot of red spots that looked like small blood vessels,out of those spots more ulcers appeared.Prior to everything I had a really bad swelling of my ankle,left one,and under the skin in my foot,right under the ankle it was really dark,almost purple.I went to the vascular surgeon,had an ultrasound,and she said that everything was ok with my veins. Last year I was diagnosed with vasculitis and prescribed glucocorticosteroides,they helped and I was ok until this august.So,I had to stand a lot,my ankles got swollen and a week later I had ulcers open,it looks like a small hole in skin,I tried the same terapy again,did not work.I have to say that I was on my feet for 12 hours a day,and it was really hot.Last week I was diagnosed liveroid vasculopathy,my new doc took me of the steroids,I drink aspirin,trental, diosmin and I have to treat ulcers with Atrauman ag compresses.It hurst a lot,he also said that I have incompetent cockett middle perforator and it is causing all of this.So many unltrasounds later,one doctor just touched my leg and he knew where to look and what to look for.I am in pain,my leg hurts,the ulcers hurt,and I think that this could have been prevented because I was going to doctors,paying a lot,I was telling them that it has to be connected to the heat and standing and they were just asking stupid things like,did you shave? Or,you were wearing uncomfortable sandals and this is a blister, things like that.I swear,most doctors are brainwashed and have no capacity to use logics.

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Replies to "Hi guys,I am writing from Serbia,we have no groups,forums,or any knowledge about this.It started a long..."

Welcome, @lelah76. I'm glad that you finally have a confirmed diagnosis of livedoid vasculopathy. You might also be interested in this related discussion:
- Treatment options for Livedoid Vasculopathy (LV)
https://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/