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Pain in the butt - Can't sit down

Chronic Pain | Last Active: Sep 23 9:49am | Replies (336)

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@pamperme

I have fallen that way skiing. I do not know what started this nerve pain I the pelvic area but I had surgery for an enlarged prostate which causes retrograde ejaculation and later started having pain in the perinium area. The perinium pain became worse after ejaculating. They treated me for prostatasis and did surgery to remove some blockage which did not work. I learned to live with the pain and got burning in the penis area and spikes in the rectum area along with the perinium area pain for ten years. When I found out I might have prostate cancer I became extremely stressed because I had ignored these pains and frequency urinary issues which was severely affecting my sleep. The pain also increased and I started to have burning in the rectum area also and the perinium pain became bad and would not go away. Before surgery my whole pelvic was inflamed in pain and my urologist said it was not an infection and it was nerve pain. It disappeared after a day of absolute misery When they removed my prostate for cancer the perinium pain disappeared and I had catheter in and woke up feeling fantastic. The whole week was wonderful sleeping through the night. I had a little rectum pain and some penis pain.
The catheter was removed and I started to get the horrendous sitting pain and penis pain I have been battling this pelvic pain now over a year after surgery along with incontinence. I am at a point now where I need the pain to be lowered and need sleep. I get in so much pelvic pain at times that it feels like it is coming from the whole pelvic area. I need to be able to manage the pain to a tolerable level. I know I am depressed even with my grandchildren being around me almost all the time. Without them as a distraction I do not know what I would do. I need the positives and lucky I have them. Wishing everyone happiness

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Replies to "I have fallen that way skiing. I do not know what started this nerve pain I..."

@maddiemae, @heisenberg34
I am so sorry for all your pain. Only people who have had severe pain, whatever the cause, can understand. I really am helped by Lyrica and Cymbalta but since I’ve gotten my spinal cord stimulator I hope to get off them. I started with Cymbalta and it is very difficult to reduce. You have to reduce it very, very slowly or go through hard withdrawal pain. But I am doing it. I really have been helped by my spinal cord stimulator but it’s a long process getting started and a lot of people don’t seem to realize this or don’t have good technical followup support. You have to work with a tech rep and go slow, waiting 48 hours before evaluating each change of settings. But it has helped me a lot and might help you too.

My prayers are with you my friend I am going through a pain literally in my butt although I am a woman I understand that when you have pain in that area everything in your pelvic hurts my private shirt I feel like I have infection but I don't all I know is I cannot sit and nothing shows up on any CT scan I've had both hips replaced my posture is bad but this here is ridiculous I can't sit any where for long periods of time we will pray for each other that God heals us.