I stayed with family but they do have hotels that give discounts (I've been told). I had Dr. Griffith. You will really like him. He was extremely easy to talk to. I was supposed to go back for a follow up but I decided to stay home with my pulmonologist. Communication is not a strength of NJ. With that being said, Dr. Griffith did call me on a Friday night to talk about my diagnosis.
I'm glad I went though. I was diagnosed with Adult Cystic Fibrosis. I will start going to a CF clinic about an hour away. It took them months to refer me.

When my husband and I went to NJH, we drove because I had to take my sick and elderly dog with me to take care of. We stayed at an Airbnb but many on this forum have stayed at a hotel that has a fridge and microwave in the room. I was able to boil my neb cup in the Airbnb because it had a kitchen. (If I had stayed in a hotel room, then I would use the microwave steam bags or take an electric pot to boil my neb cups.)
I saw Dr. Griffith. I was in the process of switching pulmonologists at home and the new pulmonologist I changed to was known by Dr. Griffith and he said they would communicate. I’m sure this doesn’t always happen. I send my quarterly sputum samples to NJH, but I think I am having a flare up, then I will send in sputum to a local lab for the local pulmonologist.

You got the 2 best, Dr. Griffith and Dr. Kasperbauer. If I ever go back to NJH I will insist on them (or Dr Dailey of course). Record transfer is quite a pain, especially the images on disk. Start early on them.

When I went to NJH in 2011, I rented an apartment for the two week period. I then made arrangements with a car service (which would probably be Uber today) to pick me up at a certain time each morning so I would arrive at 8 am and then return to NJH to pick me up a little after 5. I didn't have devices to sterilize at the time so I'm unsure how one handles that unless you're staying at a hotel that has a microwave. I have a different doctor than you but from what I understand (and I still make twice yearly trips from far away), the doctors you have are excellent. They will communicate with your pulmonologist or ID doctor. You will have a patient portal (if you don't already) and can contact the ID nurse through it when you return home and have questions.

When I arrived I was assigned a room. I was to be in that room at all times during the day so I would be readily available for whatever doc/resp therapist/etc wanted me. It was reverse-isolation room with an annoying fan but really no biggie. I shared the room with a wonderful woman I became long-distance friends with. At that time, I received a schedule of my daily tests/appts. Since it was determined that we would "watch and wait," no treatment was started so I had a lot of time on my hands. I often informed the nurses that I was going to sit outside on a bench if they wanted me. I didn't see my doctor every day but frequently...often enough to feel cared for.

I wore comfortable clothing (easy in and out for tests) and comfortable shoes (lots of walking here and there). I took books (no Kindle at that time) and some needlework. Since I didn't feel sick, it was hard to lie around all day (which is why I went outside).

I tried the Big 3 twice and couldn't tolerate the side effects. I do breathing treatments 3-4 times a week. The hypertonic saline solution contributes to chronic sinusitis and a chronic sore throat so I do the best I can.

I'm 71, still fast walking 3 miles a day, and don't need to use oxygen. I've had some scary episodes of hemoptysis and some cavitary nodules, that have come and gone, and the suggestion that the middle lobe of my right lung be removed (which might or might not be the source of hemoptysis), so I've not breezed through the past 12 years, but until Covid I managed to have a pretty decent quality of life. I've not had Covid but that's because I continue to avoid groups, don't go out much of anywhere except the grocery and gardening centers, and still wear a mask (even if I get nasty looks.)

I hope something I've shared has been helpful. I didn't know what to expect when I got there - and by this time things have probably changed a lot - but at least you might have a little idea of what to expect.

Blessings as you journey onward!

We are staying at the Hilton Hampton Inn , 4150 East Kentucky Avenue in Denver. Nice hotel and a discount for those seen at NJH. There is an altitude difference here which affected my breathing and it is cold! It was 15 and snowing on Sunday. I purchased bags for sterilizing our devices in a microwave. I have a frig and microwave in my room. I traveled here from FL so I know what you are experiencing. Just an FYI - The hotel is close to NJH and we told they are booked solid. I wouldn’t wait to book your room if you decide on the Hampton Inn.