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@jacee780

I have a pancreatic cyst in the tail of the pancreas and I'm scheduled for an endoscopic pancreas biopsy.
I have lost about 30 pounds in 2023.
I dread this test because I have sjogrens syndrome which affects my health as it's not just endrome but exocrin and my throat lymph glands are swollen
It may be just from autoimmune but I need to know

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Replies to "I have a pancreatic cyst in the tail of the pancreas and I'm scheduled for an..."

Hello @jacee780 and welcome to the NETs support group on Mayo Connect. I was personally diagnosed a number of years ago with pancreatic cysts, so I understand, just a little, what you are feeling right now. It is frightening to have something wrong with the pancreas, isn't it?

When the pancreatic cysts were found, I had already had two surgeries for NETs in the upper digestive tract, so my thoughts went directly to the idea that, "it had spread." I'm happy to report that the EUS in 2016 did not reveal any pancreatic cancer but simply pancreatic cysts. Since then, I have had numerous follow up MRIs and the cysts remain stable, they have not increased in number or in size.

Having another disorder, like Sjogren's Syndrome certainly can create a feeling of unease. However, I would urge you to take this as a process, one step at a time. Don't try to cross any bridges before you come to them. I know that this is easier said than done but it is important to keep yourself calm so that you can think clearly, ask good questions and make good decisions.

Is there a date for the endoscopy yet?

@jacee780, how are you doing? Did you have the biopsy in the meantime? How did it go?