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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 5 hours ago | Replies (7073)

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@bwendland

I'm Betty. I have chronic Migraines. I am very interested in finding out how others cope with their migraines.

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Replies to "I'm Betty. I have chronic Migraines. I am very interested in finding out how others cope..."

Bwendland, I'm afraid I misspoke. I just informed another person that I use Biotene for Burning Mouth Syndrone. I thought of it because a flair up can cause migraines. So, it is not a remedy for migraines in the usual sense. I do know it is widely used for people who have sensitive gums.

@lauren123 As I said in a prior post, those triggers can vary greatly. If you have not noticed an effect from sour cream then it is probably not a trigger for you.
I passed your previous message on to my daughter, I will have to explain to her about biotene. She really should just get in this group herself.
JK

Hello community: I have FMS and stenosis in both spine and neck along with frequent bouts of IBS.  Today is a lovely moderate temp day and I'm not aware of any triggers other than some neck discomcort and weak legs.  I just want to sleep and lay around.  I know Fibro is unpredictable, hurts here there and anywhere or just mild muscle discomfort.  Having more and more days like this. Feeling lazy and unproductive.  Anyone else feeling this way now?  

Thanks for update on the Biotene.

Hello @virtuous69. I think you will find the following discussions useful regarding your fibromyalgia. If you click on these links, you will be taken to a few conversations centered around fibromyalgia:

- Fibromyalgia pain, http://mayocl.in/2rY1D4d
- Chronic Pain and Fibromyalgia - alternatives to medications? http://mayocl.in/2tj9CwL

@virtuous69 Hi. We have similar issues. Don't feel bad about not doing much. I have Fibromyalgia, depression, rheumatoid arthritis, Sjogren's Syndrome, Spinal Stenosis, three bulging discs (two in lower back, one in neck), IBS and now Lupus. Some days you can do more then others. I find extreme heat really bothers me, changes in the weather and extreme cold (I guess I should move to Hawaii?! LOL). It has been very hard to accept that I can no longer do many of the things I used to do. But I have found out how to pace myself, so I can get a few things done. Another thing I found is that movement is oil and sitting still too long is glue. For me, water exercise helps a bunch or just walking in a mall or cool area. I have my "lost" days where I literally sleep about 18 hours! But then I get myself up and start trying to get a few things done. If you aren't careful, you can get in a vicious cycle - you feel bad so you don't move, you gain weight and it is harder to move, you now feel even worse so you don't move. I have found that I MUST move. I can only allow myself so much "down" time. But don't overdo it - like don't go out jogging or bowling or something. Just straighten up around the house, walk as much as you can, do stretches, etc. I also find warm jetted bathes to be helpful. And I love my Temperpedic bed (I do not work for them or anything ). It truly has made a difference for me not being so achy and getting better sleep. I know how much you ache. I know how depressing it can be. But you are your own best advocate. Talk to your doctor(s), look into massages or other therapies, try to eat healthy and try to keep moving. And stop negative self talk! It only makes you feel worse. Think on what you can do and not on what you can not do. You will be in my prayers. Best of luck to you. (I do not get on this site much as I still work part time and I care for my mother to has Alzheimer's and Chron's - she lives with me.)

Great advice @blindeyepug! I really like your description of movement is oil and sitting still too long is glue - fits me to a T. Exercise really helps even if it's a struggle doing it. I do 30 minutes on my recumbent exercise bike most every morning as soon as I get up out of bed just to get my day started and I only have polymyalgia rheumatica and small fiber peripheral neuropathy, plus a failing back with a little bit of osteopenia.

Wishing for a pain free day for all my PN and other Connect friends who are hurting.

John

@blindeyepug You are so right on the moving. My almost daily pool exercises are essential and despite the fact that I hate, hate, hate going I am glad afterwards and have far more energy than when I don't go. I am so fortunate to have a beautiful club not far from me (about 20 minutes away) because up here in NH there are not too many like it.
I generally steer clear of hot tubs due to being on immunosuppressants and regular walking is hard on my knees which are both problematic. I asked my surgeon about hot tubs, telling him I only use the one at the club when I have been in the pool for about an hour and no one has been in there. He basically would not say NO, he said he would leave it to my discretion. Well today, I got out of the pool and my legs were killing me. I hadn't seen anyone in the hot tub while I was there so I was happily on my way over to it and I saw the sign "hot tub closed"! What a disappointment.
JK