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Joint Pain after Organ Transplant

Transplants | Last Active: Oct 9 8:39am | Replies (85)

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@xplantguy1212

I'm 43 and had a pancreas transplant 22 months ago. I had never had joint pain prior to my surgery, but have had horrible knee pain in both knees for close to a year now and both feet for almost 6 months. I was on 200mg cyclosporine (instead of tacro) 2x daily, but down to 150 2x daily now. Joint imaging has looked normal & did some PT, but my joint pain remains about the same. I'm also pretty skinny and was very active prior to joint pain. I really think it's the immunosuppressants causing it. Has anyone had similar experience or have some good advice?

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Replies to "I'm 43 and had a pancreas transplant 22 months ago. I had never had joint pain..."

I just did some searching on the internet to see if other people were having the same problem I am. I'm 42 and I'm 2 months post transplant. I didn't have any issues prior to transplant with this type of pain. Now it's everywhere! I'm hurting in my joints mostly but it's all my joints. My shoulders, my elbows, my hands and fingers and wrist, my hips, my knees, my ankles. My toes. Everything! So far, from what I've read, this could have all been caused by them tapering me off the prednisone. I don't like the side effects of the prednisone but I've been told that it might help if I was put back on it and then tapered back off.