Loved reading your story, Pam (@pb50 ). Have to agree that finding a specialist able to understand you and what you need is a very fraught journey. And in this instance I do mean 'journey' - sometimes it feels like you've been to Mongolia and back. I can relate - also being RA factor -ve, and having had one rheumatologist tell me 'nothing wrong with you, although you have OA in your big toe'. (!) Finding a great rheumatologist really is the key to both the right treatment and feeling good about yourself. I feel as though I can cope with anything RA and Fibro throw at me if there are empathetic people around who don't make you feel like a fraud. Good luck with the CT - hope it's something identifiable and treatable. FWIW, my Fibromyalgia manifests sometimes as pain and tightness around my ribcage that feels like it's restricting breathing so there really are a whole truckload of 'maybe's. Fingers crossed for you. x