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I also was surprised to learn about having osteoporosis as I’m very active. (65 now). I was concerned about Tymlos for that reason.
I checked with my oncologist about which osteoporosis drug was safest. She said either one was okay to take with MGUS.
But before I could take anything, I went snow skiing and got 2 vertebral compression fractures- never broken any bones before (was 63 then).
So started Evenity then did a Reclast infusion last November. Had side effects with both but they were effective- no more fractures (no snow skiing either!).
I’ve taken a few spills (turned my ankle, etc but nothing broke.
However the black box warning on Tymlos may be removed now?
I think the warning on Evenity may be gone too.
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Hello, can I ask what the side effects were from the osteoporosis drug treatments you took and whether you are on continued IV infusions or oral medication. I am almost 70, have always been very active (walk outside every day 3+ miles) and was just diagnosed with osteoporosis last year. When I recently saw a Rheumatologist to rule out an autoimmune disorder on another matter, both her and her nurse seemed horrified that I was not on any medication for it. I have ALWAYS been sensitive to medications (just the way God made me) and I am leery of taking Fosamax (her recommendation) or any other drugs. Has anyone had side effects on Fosamax? I also have MGUS diagnosed in 2021 and I see the hematologist again in November and will discuss with him. Thank you all in advance for any feedback and praying for healing and comfort to all those on this forum.