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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: May 5 6:09pm | Replies (751)

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@akellmayo4me

I am told now by 3 oncologists I have POEMS. ( an ugly step sister - I made that name up) of Malignant Myeloma. If they are all correct I will find out lots more when I appear for my appt 11/29 at Moffitt Cancer Center Tampa Fl for my initial eval. I have had 6 month of studies no treatment start was BLUE FEET 👣 PERIPHERAL NEUROPATHY- then hypothyroid NEW Diagnosis at age 70 monoclonal gammopathy & a bone 🦴 lesion S1.

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Replies to "I am told now by 3 oncologists I have POEMS. ( an ugly step sister -..."

Hi @akellmayo4me, you may wish to join others talking about POEMS in this discussion:
- Has anyone been diagnosed with POEMS syndrome?
https://connect.mayoclinic.org/discussion/have-anyone-been-diagnosed-with-poems-syndrome/

How are you doing?